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Collaborative Partnerships

UNITED STATES – PATIENT ADVOCACY ORGANIZATIONS 

  • Pulmonary Fibrosis Foundation (PFF)
  • American Lung Association (ALA)
  • PF Warriors  

INTERNATIONAL –  PATIENT ADVOCACY ORGANIZATIONS

  • European Pulmonary Fibrosis Federation (EU-PFF)
  • Action for Pulmonary Fibrosis (APF)
  • Canadian Pulmonary Fibrosis Foundation (CPFF)

CLINICAL & ACADEMIC ORGANIZATIONS

  • American Thoracic Society (ATS)
  • Society of Clinical Care Medicine (SCCM)

CLINICAL TRIALS & RESEARCH

  • Patient-Centered Outcomes Research Institute (PCORI)
  • Temple University College of Public Health
  • LeapCure

INDUSTRY

  • Boehringer Ingelheim
  • Vicore

OXYGEN INNOVATION COMPANY

  • patientMpower 

PFF CARE CENTERS

  • Temple Lung Center
  • Penn State Health/Hershey
  • Jefferson Health
  • Penn Medicine
  • Simmons Center for Interstitial Lung Disease at UPMC

PFF CLINICAL ASSOCIATE MEMBER 

  • St. Luke’s University Health Network
  • Christiana CareRegional Community Health Networks

REGIONAL AREA COMMUNITY HEALTH NETWORK

  • Lehigh Valley Health Network
  • Geisinger
  • Wellspan Health
  • Encompass Health Tinton Falls
  • Encompass Health Toms River
  • Rutgers Health
  • Robert Wood Johnson/Trinitas
  • Robert Wood Johnson/Rahway 

LOCAL COMMUNITY

  • Lehigh Valley Chamber of Commerce

VETERAN AFFAIRS 

  • University of Texas/San Antonio Veteran Affairs
  • San Francisco Veteran Affairs

PROJECT COLLABORATIVE PARTNER 

  • Cleveland Clinic
  • University Health Network & Sinai Health Systems- Toronto, Canada

PA RARE DISEASE ADVISORY COUNCIL 

  • Co-Chair – Pennsylvania Rare Disease Advisory Council (PARDAC)

ACCREDITATIONS

  • Charity Navigator
  • Candid
  • Pennsylvania Association of Nonprofit Organizations (PANO) – Standards Basics
  • Better Business Bureau