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Patient and Care Partner Stories

Kathy Patrick

Kathy’s page is dedicated to all IPF patients and their families coping with this disease. Kathy will be writing about her story to inspire us and motivate all of us to keep working hard to find a cure.  It has been a long journey for Kathy and a true honor to have her contribute to Wescoe Foundation for Pulmonary Fibrosis and the IPF community!

Kathy was my piano teacher and ironically, coped with IPF and all of its trails and tribulations.  Kathy had a double lung transplant in March 2012 and made it a mission to attend our Wescoe Walk on October 24, 2013.  It was moving and incredibly comforting to know that Kathy is doing well and thriving with her new lungs.

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Brian Zionts-Bernstein

“Life is not measured by the number of breaths we take, but by the moments that take our breath away.”

My journey is a story of two families. My family and an extremely generous family, that continues to remain anonymous to me.

In 2007 at the age of 42, I was diagnosed with an ILD, Interstitial Lung Disease. I had a lung biopsy in the Spring of 2008. I was diagnosed with Idiopathic Pulmonary Fibrosis, IPF. Pulmonary Fibrosis is a disease without a cure and it is terminal. The median life expectancy is 3 – 5 years. Kym, my wife, and I were devastated.


ATS Podcast

The American Thoracic Society’s Breathe Easy Podcast, “Pulmonary-Palliative Care: We Be-LUNG Together” hosted by and Dr. Patricia Fogelman, DNP, ACHPN, globally highlights Jen Wescoe and the Wescoe Foundation for Pulmonary Fibrosis’s critical engagement in the PF community.