Skip to content

IPF Support Groups

Pennsylvania PF Support Groups

All support groups held virtually
Unless Specified Hybrid

 

Temple Lung Center — Virtual

3401 N. Broad Street, 5th Floor, Zone D (Ambulatory Care Center)
Philadelphia, PA 18140

Meetings Times: Every 3 months on the Second Tuesday
(3/12, 6/11, 9/10, 12/10) from 2-3 pm

Contact: Michelle Vega-Olivo, CRNP at michelle.vega@tuhs.temple.edu or
Jennifer H. Wescoe-Singley, M.Ed., NCC at jennifer@wescoe.org  | 484-553-6340

JOIN ZOOM MEETING

 

St. Luke’s University Hospital Anderson Campus— Virtual

Medical Office Building Ground Floor (Entrance at Fitness Center)
1700 St Luke’s Blvd., Easton, PA 18045

Meeting times: Every 2nd Wednesday of each month from 2-3 pm

Contact: Jennifer H. Wescoe-Singley, M.Ed., NCC
jennifer@wescoe.org | 484.553.6340

MEETING DATES   |   JOIN ZOOM MEETING

 

St. Luke’s University Hospital Lung Transplant Mentorship Program Bethlehem Campus— Virtual

Priscilla Payne Hurd Education Center, Rm 113
801 Ostrum St., Bethlehem, PA 18015

Meeting Times: Every 4th Tuesday of each month from 2-3 pm

Contact: Jennifer H. Wescoe-Singley, M.Ed., NCC
jennifer@wescoe.org | 484.553.6340

MEETING DATES   |   JOIN ZOOM MEETING

 

Lehigh Valley Health Network Hospital— Virtual

Kasych Pavilion (to the right of hospital entrance) Free Valet Parking
1200 Cedar Crest Blvd., Allentown, PA 18103

Meeting Times: Every 3rd Tuesday of each month from 2-3 pm

Contact: Jennifer H. Wescoe-Singley, M.Ed., NCC
jennifer@wescoe.org | 484.553.6340

MEETING DATES   |   JOIN ZOOM MEETING

 

Geisinger Medical Center/Danville— Virtual

GO TO MAIN ENTRANCE – Abigail Community Room (Valet Parking)
100 N. Academy Ave., Danville, PA 17822

Meeting Times: Every 1st Thursday of each month from 2:30-3:30 pm

Contact: Jennifer H. Wescoe-Singley, M.Ed., NCC
jennifer@wescoe.org | 484.553.6340

MEETING DATES   |   JOIN ZOOM MEETING

 

Geisinger Medical Center/Wyoming Valley— Virtual

Valley Medical Building, General Surgery Conference Room
1000 E. Mountain Blvd., Wilkes Barre, PA 18711

Meeting Times: Every 4th Wednesday of each month from 2:30-3:30 pm

Contact: Jennifer H. Wescoe-Singley, M.Ed., NCC
jennifer@wescoe.org | 484.553.6340

MEETING DATES   |   JOIN ZOOM MEETING

 

Project Positivity for Pulmonary Fibrosis— Virtual

Meeting Times: Every 2nd Friday of each month from 1-2 pm

Contact: Jennifer H. Wescoe-Singley, M.Ed., NCC
jennifer@wescoe.org | 484.553.6340

MEETING DATES   |   JOIN ZOOM MEETING

 

Veteran’s ILD Support Group— Virtual

Meeting Times: Every 2nd Thursday of each month from 5-6 pm

Contact: Jennifer H. Wescoe-Singley, M.Ed., NCC
jennifer@wescoe.org | 484.553.6340

MEETING DATES   |   JOIN ZOOM MEETING

 

Women & ILD Support Group— Virtual

Meeting Times: Every 1st Wednesday of each month from 1-2 pm

Contact: Jennifer H. Wescoe-Singley, M.Ed., NCC
jennifer@wescoe.org | 484.553.6340

MEETING DATES   |   JOIN ZOOM MEETING

WELLSPAN Health York Hospital— Virtual / Hybrid

WellSpan Pulmonary Rehab Education Room
2350 Freedom Way UNIT 207, York, PA 17402

Meeting Times: 1st Wednesday of each month from 5-6 pm

Virtual Contact: Jennifer H. Wescoe-Singley, M.Ed., NCC
jennifer@wescoe.org | 484.553.6340

RSVP In-Person Contact: Lorraine Snyder RRT, AE-C Pulmonary Rehab Team Leader
lsnyder3@wellspan.org | 717-741-8175

MEETING DATES   |   JOIN ZOOM MEETING

 

Wellspan Chambersburg Pulmonary Fibrosis Support Group— Virtual

Wellspan Health, Building #2, 12 St. Paul’s Dr.
Chambersburg, PA 17201

Meeting Times: Every 3rd Monday of each month from 5-6 pm

Contact: Jennifer H. Wescoe-Singley, M.Ed., NCC
jennifer@wescoe.org | 484.553.6340

MEETING DATES  |  JOIN ZOOM MEETING

 

Penn State Hershey Medical Center University Fitness and Conference— Virtual

Penn State Hershey Medical Center – University Fitness Center
30 Conference Dr. Hershey, PA 17033

Meeting Times: The last Monday of every month from 5.30-7 pm

Contact: Timothy Sheehan at tsheehan@pennstatehealth.psu.edu  | 717-531-2925

MEETING DATES

 

Simmons Center IPF Support Group— Virtual

UPMC Presbyterian Hospital (Room location varies)
3459 Fifth Avenue, Pittsburgh, PA 15213

Stay Tuned for More Details

Contact: Stacie Truszkowski at truszkowskisl@upmc.edu | 412-624-7225

JOIN ZOOM MEETING

 

University of Pennsylvania Interstitial Lung Disease Support Group— Virtual

Smilow Center for Translational Research – Room 01-102 3400
Civic Center Blvd, Philadelphia, PA 19104

Meeting Times: Specific Fridays of each month from 2-3:30 pm

Contact: Jamie Lederer, Interstitial Lung Disease Nurse Practitioner
Jamie.lederer@uphs.upenn.edu | 215.615.7242

*Zoom link changes monthly, please email ILDSupportGroup@pennmedicine.upenn.edu for updated link

 

Jefferson Pulmonary Fibrosis Support Group— Virtual

834 Walnut Street, Suite 650,
Philadelphia, PA 19107

Meeting Times: Every 3rd Thursday of the month from 12:30-2 pm

Contact: Emily Littman, PA-C at  emily.littman@jefferson.edu  |  215-955-5161

MEETING DATES

 

COFFEE WITH CAREPARTNERS— Virtual

A place and time where CarePartners can connect, talk, and support each other while caring for their loved one living with pulmonary fibrosis.

Meeting Times: Every 1st Friday of each month 10-11 am
JOIN ZOOM MEETING

Meeting Times: Every 4th Tuesday of each month 12-1 pm 
JOIN ZOOM MEETING

Contact: Jennifer H. Wescoe-Singley, M.Ed., NCC
jennifer@wescoe.org  | 484-553-6340

MEETING DATES

 

Grief Support Group— Virtual

Meeting Times: Every 4th Friday of each month from 1-2 pm

Contact: Jennifer H. Wescoe-Singley, M.Ed., NCC
jennifer@wescoe.org | 484.553.6340

MEETING DATES   |   JOIN ZOOM MEETING

 New Jersey PF Support Groups

Garden State PF Support Group— Virtual / Hybrid

Morristown Medical Center
100 Madison Ave., Morristown, NJ

Meeting times: Last Wednesday of each month at 7PM

Contact Maggie Liebig to confirm virtual / hybrid
gspfsgbreathe@gmail.com    gardenstatebreathe.org   

  

Encompass Health of Tinton Falls Monmouth Support Group— Virtual

2 Centre Plaza, Tinton Falls, NJ 07724

Meeting Times: Every 3rd Thursday of each month from 2-3 pm

Contact: Jennifer H. Wescoe-Singley, M.Ed., NCC
jennifer@wescoe.org | 484.553.6340

MEETING DATES   |   JOIN ZOOM MEETING

  

Rutgers Health Pulmonary Division Pulmonary Fibrosis Support Group Robert Wood Johnson Hospital/New Brunswick Campus— Virtual

CAB (Clinical Academic Building)
125 Patterson St., New Brunswick, NJ 08901

Meeting Times: Every 1st Tuesday of each month from 2-3 pm

Contact: Jennifer H. Wescoe-Singley, M.Ed., NCC
jennifer@wescoe.org | 484.553.6340

MEETING DATES   |   JOIN ZOOM MEETING

Robert Wood Johnson University Hospital/Rahway Lung Disease Support Group— Virtual

Nicholas Quadrel Center for Cardio-Pulmonary Rehabilitation; 2nd floor
865 Stone Street, Rahway, NJ

Meeting Times: Every 1st Friday of each month 3.30-4:30 pm

The program is free, but registration is required. To register or for more information call: 732-499-6193

Contact: Jennifer H. Wescoe-Singley, M.Ed., NCC
jennifer@wescoe.org | 484.553.6340

MEETING DATES   |   JOIN ZOOM MEETING

  

Encompass Health of Toms River— Virtual

14 Hospital Drive, Toms River, NJ 

Meeting Times: Every 4th Thursday of each month from 1-2 pm

Contact: Jennifer H. Wescoe-Singley, M.Ed., NCC
jennifer@wescoe.org | 484.553.6340

MEETING DATES   |   JOIN ZOOM MEETING

  

Robert Wood Johnson/Trinitas ILD Support Group— Virtual

Meeting Times: Every 3rd Friday of each month from 2-3 pm

Contact: Jennifer H. Wescoe-Singley, M.Ed., NCC
jennifer@wescoe.org | 484.553.6340

MEETING DATES   |   JOIN ZOOM MEETING

Delaware PF Support Groups

ChristianaCare ILD Support Group— Virtual

Meeting Times: Every 3rd Wednesday of each month from 12-1 pm

Contact: Jennifer H. Wescoe-Singley, M.Ed., NCC
jennifer@wescoe.org | 484.553.6340

MEETING DATES   |   JOIN ZOOM MEETING

Better Breathers Club— Virtual

4755 Ogletown Stanton Rd., Newark, DE 19718

Meeting Times: Every other month on March 19, May 21, July 23, September 17, and November 18 from 1:30-2:30 pm. 

Contact: Beth Austin at eaustin@christianacare.org

MEETING FLYER 

Pulmonary Fibrosis Foundation (PFF)

click below to search for a support group within the country/internationally

 

The Wescoe Foundation for Pulmonary Fibrosis provides support, advocacy, and resources for people with PF and their families to sustain the highest possible quality of life.

Ron Wescoe was a committed football and baseball coach. In 2003, he was diagnosed with PF. He and his family were forced to cope with this devastating disease on their own until Ron passed away on October 29, 2004. At the time, there was little information available, few medical resources, and limited support. Ron’s daughter, Jennifer H. Wescoe, founded the non-profit Wescoe Foundation for Pulmonary Fibrosis in 2011 to honor her father and to serve as a resource for the PF community in Eastern Pennsylvania. The organization creates, implements, and facilitates support groups within close proximity to patients.

Wescoe believes support groups are one of the most helpful resources for PF patients. She notes that patients often tell her they find the support they need and that the groups act as a “bridge” to their healthcare team, making it easier to manage their disease. But, she points out in a recent blog post, there are other important reasons to consider attending a support group:*

  • Further your disease education on topics such as oxygen therapy, the role of a healthy diet, clinical trial eligibility, and qualifying for lung transplantation. Learn from others’ experiences in a supportive environment that often includes a healthcare professional and where no question is too big or small.
  • Find new resources without the added stress of spending countless hours online.
  • Feel better by being empowered to become your own advocate and have worthy conversations with your healthcare team. As Wescoe notes, “You are your own best advocate.”
  • Feel more connected, realizing you are not alone. Surround yourself with like-minded people who all speak the same language. States Wescoe, “support groups break down barriers of isolation and may help you feel more connected and grounded.” Moreover, they may help depression and anxiety according to research.

The article can be found here.

*Wescoe, J.H. (2017, September 13). Top 4 Reasons to Attend a Support Group. Temple Health.