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IPF Support Groups

Pennsylvania PF Support Groups

 

Temple Lung Center
The Pulmonary Fibrosis Support Group will continue to meet virtually until further notice

3401 N. Broad Street
5th Floor, Zone D (Ambulatory Care Center)
Philadelphia, PA 18140

Meetings Held Quarterly from 2:00 – 3.30 PM
Contact: Michelle Vega-Olivo, CRNP
michelle.vega@tuhs.temple.edu

Meeting dates (TBD)-stay tuned!

St. Luke’s University Hospital
Anderson Campus
The Pulmonary Fibrosis Support Group will continue to meet virtually until further notice

Medical Office Building Ground Floor
1700 St Luke’s Blvd.
Easton, PA 18045
Entrance at Fitness Center

Meeting times: Every 2nd Wednesday of each month from 2-3 pm

Contact: Jennifer H. Wescoe-Singley, M.Ed., NCC
jennifer@wescoe.org
484.553.6340

Click here for meeting dates

St. Luke’s University Hospital
Lung Transplant Mentorship Program
Bethlehem Campus
The Pulmonary Fibrosis Support Group will continue to meet virtually until further notice.

Priscilla Payne Hurd Education Center, Rm 113
801 Ostrum St.
Bethlehem, PA 18015

Meeting times: Every 4th Tuesday of each month from 2-3 pm

Contact: Jennifer H. Wescoe-Singley, M.Ed., NCC
jennifer@wescoe.org
484-553-6340

Click here for meeting dates

Lehigh Valley Health Network Hospital
The Pulmonary Fibrosis Support Group will continue to meet virtually until further notice.

Kasych Pavilion (to the right of hospital entrance)
Free Valet Parking
1200 Cedar Crest Blvd.
Allentown, PA 18103

Meeting times: Every 3rd Tuesday of each month from 2-3 pm

Contact: Jennifer H. Wescoe-Singley, M.Ed.,NCC
jennifer@wescoe.org
484-553-6340

Click here for meeting dates

Geisinger Medical Center/Danville
The Pulmonary Fibrosis Support Group will continue to meet virtually until further notice.

GO TO MAIN ENTRANCE Valet Parking
Abigail Community Room
100 N. Academy Ave.
Danville, PA 17822

Meeting times: Every 1st Thursday of each month from 2.30-3.30 pm

Contact: Jennifer H. Wescoe-Singley, M.Ed.,NCC
jennifer@wescoe.org
484-553-6340

Geisinger Medical Center/Wyoming Valley
The Pulmonary Fibrosis Support Group will continue to meet virtually until further notice.

Valley Medical Building
General Surgery Conference Room
1000 E. Mountain Blvd.
Wilkes Barre, PA 18711

Meeting times: Every 4th Wednesday of each month from 2.30 -4 pm

Contact: Jennifer H. Wescoe-Singley, M.Ed.,NCC
jennifer@wescoefoundationforpulmonaryfibrosis.org
484-553-6340

Click here for meeting dates

“Coffee with CarePartners”

A place and time where CarePartners can connect, talk, and support each other while caring for their loved one living with pulmonary fibrosis.

The Pulmonary Fibrosis Support Group will continue to meet virtually until further notice.

Diana’s Café
4907 PA-309
Center Valley, PA 18034

Group Meets every 1st Friday of each month 10-11 am

Contact: Jennifer Wescoe-Singley, M.Ed., NCC for more information
jennifer@wescoe.org
484.553.6340

WELLSPAN Health York Hospital
The Pulmonary Fibrosis Support Group will continue to meet virtually until further notice.

2350 Freedom Way
#202
York, PA 17402

Meeting times: 1st Wednesday of each month 5-6 pm

Contact: Jennifer Wescoe-Singley, M.Ed., NCC
jennifer@wescoe.org
484.553.6340

Wellspan Chambersburg Pulmonary Fibrosis Support Group
The Pulmonary Fibrosis Support Group will continue to meet virtually until further notice.

Wellspan Health
Building #2
12 St. Paul’s Dr.
Chambersburg, PA 17201

Meetings held every 3rd Monday of each month from 5-6.30 pm

Contacts:
Jennifer Briggs at
tjbriggs717@outlook.com; 717-262-8447
Bonnie Harmon at bonnieharmon32@yahoo.com; 717-658-2425

Click here for meeting dates

Penn State Hershey Medical Center University Fitness and Conference
The Pulmonary Fibrosis Support Group will continue to meet virtually until further notice.

Center Room
302A Hershey, PA 17033

Group meets: Last Monday of every month. Meeting dates change occasionally.
Time: 5:30 p.m. to 7:30 p.m.
Contact:717.531.0003

Click here for meeting dates

Simmons Center IPF Support Group
The Pulmonary Fibrosis Support Group will continue to meet virtually until further notice.

UPMC Presbyterian Hospital
3459 Fifth Avenue
Pittsburgh, PA 15213

Room location varies; Time: 1-3 pm
Contact: Stacie Truszkowski at 412-624-7225

University of Pennsylvania Interstitial Lung Disease Support Group
Please reach out to Jamie Lederer for upcoming support groups

Smillow Center for Translational Research
Room 01-102 3400
Civic Center Blvd
Philadelphia, PA 19104

Please contact Jamie Lederer for dates & times.
Jamie Lederer, Interstitial Lung Disease Nurse Practitioner
215.615.7242
Jamie.lederer@uphs.upenn.edu

Jefferson Pulmonary Fibrosis Support Group
The Pulmonary Fibrosis Support Group will continue to meet virtually until further notice.

834 Walnut Street, Suite
650 Philadelphia, PA 19107

Group meets every 2nd Tuesday of the month starting October 2018 except January and July.
Please contact Tamra Perez at tamra.perez@jefferson.edu

Click here for meeting dates

IPF Support Group UPMC Hamot Outpatient
The Pulmonary Fibrosis Support Group will continue to meet virtually until further notice.

3330 Peach Street Entrance C Lower Level
Erie, PA 16508

Group Meets: Every 3rd Friday of each Month Time: 1:00 – 2:00
Please Contact Josh Henry at 814.877.5611
j12henry@hotmail.com

 
 
 
 
 

New Jersey PF Support Groups

 

Garden State PF Support Group
The Pulmonary Fibrosis Support Group will continue to meet virtually until further notice.

Morristown Memorial Hospital
100 Madison Ave.
Morristown, NJ

Meeting times: Last Wednesday of each month
Contact: Maggi Liebig and Charlie Bryant
liebigm@gmail.com

Encompass Health of Tinton Falls Pulmonary Fibrosis Support Group
The Pulmonary Fibrosis Support Group will continue to meet virtually until further notice.

Encompass Health of Tinton Falls
2 Centre Plaza
Tinton Falls, NJ 07724

Meeting times: Every 3rd Thursday of each month 2-3 pm
Contact: Jennifer H. Wescoe-Singley, M.Ed.
jennifer@wescoe.org
484-553-6340

Click here for meeting dates

Rutgers Health Pulmonary Division Pulmonary Fibrosis Support Group
Robert Wood Johnson Hospital/New Brunswick Campus
The Pulmonary Fibrosis Support Group will continue to meet virtually until further notice.

CAB (Clinical Academic Building)
125 Patterson St.
New Brunswick, NJ 08901

Meeting times: Every 1st Tuesday of each month 2-3 pm
Contact: Jennifer H. Wescoe-Singley, M.Ed., NCC
jennifer@wescoe.org
484-553-6340

Robert Wood Johnson University Hospital/Rahway
Lung Disease Support Group
The Pulmonary Fibrosis Support Group will continue to meet virtually until further notice.

Nicholas Quadrel Center for Cardio-Pulmonary Rehabilitation; 2nd floor
Robert Wood Johnson University Hospital Rahway
865 Stone Street, Rahway, NJ

Meeting times: Every 1st Friday of each month 3.30-4:30 pm
The program is free, but registration is required.
To register or for more information call: 732-499-6193
Or contact: Jennifer H. Wescoe-Singley, M.Ed.,NCC
jennifer@wescoe.org
484-553-6340

Click here for meeting dates

Encompass Health of Toms River
The Pulmonary Fibrosis Support Group will continue to meet virtually until further notice.

14 Hospital Drive
Toms River, NJ 

Meets every 4th Thursday of each month 1-2.30 pm

Contact: Jennifer H. Wescoe-Singley, M.Ed.,NCC
jennifer@wescoe.org
484-553-6340

Click here for meeting dates

 

Delaware PF Support Groups

 

Better Breathers Club

4755 Ogletown Stanton Rd.
Newark, DE 19718

Meeting times: every 2nd Wednesday of each month


Contact: Sharon Stallings at 302.623.5641
sstallings@christianacare.org for meeting times

Pulmonary Fibrosis Foundation (PFF)

click below to search for a support group within the country/internationally

The Wescoe Foundation for Pulmonary Fibrosis provides support, advocacy, and resources for people with PF and their families to sustain the highest possible quality of life.

Ron Wescoe was a committed football and baseball coach. In 2003, he was diagnosed with PF. He and his family were forced to cope with this devastating disease on their own until Ron passed away on October 29, 2004. At the time, there was little information available, few medical resources, and limited support. Ron’s daughter, Jennifer H. Wescoe, founded the non-profit Wescoe Foundation for Pulmonary Fibrosis in 2011 to honor her father and to serve as a resource for the PF community in Eastern Pennsylvania. The organization creates, implements, and facilitates support groups within close proximity to patients.

Wescoe believes support groups are one of the most helpful resources for PF patients. She notes that patients often tell her they find the support they need and that the groups act as a “bridge” to their healthcare team, making it easier to manage their disease. But, she points out in a recent blog post, there are other important reasons to consider attending a support group:*

  • Further your disease education on topics such as oxygen therapy, the role of a healthy diet, clinical trial eligibility, and qualifying for lung transplantation. Learn from others’ experiences in a supportive environment that often includes a healthcare professional and where no question is too big or small.
  • Find new resources without the added stress of spending countless hours online.
  • Feel better by being empowered to become your own advocate and have worthy conversations with your healthcare team. As Wescoe notes, “You are your own best advocate.”
  • Feel more connected, realizing you are not alone. Surround yourself with like-minded people who all speak the same language. States Wescoe, “support groups break down barriers of isolation and may help you feel more connected and grounded.” Moreover, they may help depression and anxiety according to research.

The article can be found here.

*Wescoe, J.H. (2017, September 13). Top 4 Reasons to Attend a Support Group. Temple Health.

Announcing our NEW MOBILE WEB APP!
The Wescoe Foundation's PA IPF Support Network celebrates the first of its kind MOBILE WEB APP pioneering the effort to connect patients, families, and healthcare providers to support, education, and resources at their fingertips!